I’ve got a couple of trips coming up in the next month or so. Trips I’m more than excited for, but that are also anxiety inducing. They aren’t too far away, but they do involve planning. A lot of planning. I need to know exactly what I’m taking with me. I need to look atContinue reading “Travelling with multiple disabilities and conditions – the essentials before I’ve even left home.”
Tag Archives: fibromyalgia
An open letter to Lady Gaga after watching Gaga: Five Foot Two
Dear Stefani, I know there are days when with the depression, the anxiety, and the fibromyalgia, it all feels like it gets too much. I know that there are days where you just want to hide from the world. I know these things, because like you, I have fibro, I have depression, and I haveContinue reading “An open letter to Lady Gaga after watching Gaga: Five Foot Two”
Consent in a non-consent world
At 35, I’m pretty much settled on the basics of what I do and do not like in life. I love hot chocolate made with coconut milk on cold winter days (especially when laced with marshmallows), long hot baths that ease my fibromyalgia, curling up with my sister for a Netflix binge of one ofContinue reading “Consent in a non-consent world”
Who’s the F***ing Snowflake?
A rundown of the past week: I posted about my past and lost a friend of 17 years who thought it was more important for me to do something they wanted me to do than that I finally felt able to say ‘This is me, this is why I have PTSD.’ Only a few monthsContinue reading “Who’s the F***ing Snowflake?”
When you’ve met one person with…
My dear and loyal readers, you know the drill by now, I’m an Aspie, I have various medical conditions and various disabilities, and I’m Queer as that rainbow that’s coming after the thunderstorm that’s currently raging outside your window. Here’s the thing though. Having a list of labels a mile long means I can quiteContinue reading “When you’ve met one person with…”
Milestones, New Chapters, Positive Steps
In just over 6 months I turn 35. I’ll have been alive been alive 30 years longer than doctors expected. And I’m proud of that. A lot prouder than I am of most things in my life, because it marks me as a survivor against all odds. The scar that runs from my left underContinue reading “Milestones, New Chapters, Positive Steps”
What about when the doctors just don’t know?
On top of my usual issues with disabilities and health, the past few months have been agony beyond all other agony. My hips, thighs, calves, and lower back are causing me untold pain. I’m over it. I can’t handle it any longer, and I’m sick of not getting to the bottom of it. My doctorContinue reading “What about when the doctors just don’t know?”