Disability

I’m tired

I’m tired. Perhaps that’s the hardest thing to explain. Because when I say I’m tired, I don’t mean that I’m just ‘tired’, I mean that I’m tired to my very soul. I’m tired of being a chronic pain patient. I’m tired of being in pain all the time, I’m tired of having to explainContinue reading “I’m tired”

Travelling with multiple disabilities and conditions – the essentials before I’ve even left home.

I’ve got a couple of trips coming up in the next month or so. Trips I’m more than excited for, but that are also anxiety inducing. They aren’t too far away, but they do involve planning. A lot of planning. I need to know exactly what I’m taking with me. I need to look atContinue reading “Travelling with multiple disabilities and conditions – the essentials before I’ve even left home.”

An open letter to Lady Gaga after watching Gaga: Five Foot Two

Dear Stefani, I know there are days when with the depression, the anxiety, and the fibromyalgia, it all feels like it gets too much. I know that there are days where you just want to hide from the world. I know these things, because like you, I have fibro, I have depression, and I haveContinue reading “An open letter to Lady Gaga after watching Gaga: Five Foot Two”

Who’s the F***ing Snowflake?

A rundown of the past week: I posted about my past and lost a friend of 17 years who thought it was more important for me to do something they wanted me to do than that I finally felt able to say ‘This is me, this is why I have PTSD.’ Only a few monthsContinue reading “Who’s the F***ing Snowflake?”

‘Suck it up Buttercup’ is not how I approach my health.

My mum used to tell me that I was born fighting. That this little 6lb 12oz bundle of flesh that was literally blue from the waist down due to a coarctation of the aorta was not going to let anything stop them. I could scream with the best of them, and I was going to make that known. It would take an hour and a half to give me my bottle and approximately fifteen minutes for most of it to come back up. In 1982, not a lot was known about allergies to formula and or breast milk apparently. Nowadays I would have been put on some lactose free alternative.

When you’ve met one person with…

My dear and loyal readers, you know the drill by now, I’m an Aspie, I have various medical conditions and various disabilities, and I’m Queer as that rainbow that’s coming after the thunderstorm that’s currently raging outside your window. Here’s the thing though. Having a list of labels a mile long means I can quiteContinue reading “When you’ve met one person with…”

Why I refuse to hide the reality of my health from my social media accounts

As an indie author, I’ve been asked why I don’t keep my health separate from my work. Why I choose to talk about it so openly on twitter, on my personal facebook, and on my blog. Here’s the reason: I CAN. It’s really that simple. There are thousands of people, actually, millions of people, outContinue reading “Why I refuse to hide the reality of my health from my social media accounts”

Channelling my inner Sci-Fi Badass

WARNING – THIS POST CONTAINS STRONGER LANGUAGE THAN MOST OF MY POSTS USUALLY DO, SO IF YOU’RE OFFENDED BY THE USE OF STRONG LANGUAGE/DON’T WANT YOUR KIDS READING IT. CLOSE THE POST NOW. Newsflash people, I’m in a wheelchair, I have physical and neurological disabilities and conditions. This doesn’t mean that I can’t communicate, andContinue reading “Channelling my inner Sci-Fi Badass”

Milestones, New Chapters, Positive Steps

In just over 6 months I turn 35. I’ll have been alive been alive 30 years longer than doctors expected. And I’m proud of that. A lot prouder than I am of most things in my life, because it marks me as a survivor against all odds. The scar that runs from my left underContinue reading “Milestones, New Chapters, Positive Steps”